crohnsandcolitisuk
crohnsandcolitisuk
  • 157
  • 1 273 522
Molly World IBD Day Myths Video
There are more than 500,000 people in the UK living with Crohn’s or Colitis. That's 25,000 people a year who are given the life changing diagnosis of Inflammatory Bowel Disease.
It’s a sizeable chunk of the population, but despite this, there are often myths and misconceptions surrounding these conditions, which feed stigmas, hinder understanding, and undermine the severity of symptoms experienced by those living with Crohn's or Colitis.
This World IBD Day, with the help of some of our Crohn's & Colitis UK ambassadors and influencers, we’re highlighting some of the most popular misconceptions people have about Crohn’s and Colitis and setting the record straight.
To find out more, visit: crohnsandcolitis.org.uk/get-involved/world-ibd-day
Переглядів: 758

Відео

Zosia’s Story
Переглядів 1682 місяці тому
Take a moment to watch this video featuring Zosia, who was diagnosed with Ulcerative Colitis at the age of 14. Zosia shares her experiences navigating school and university while managing her condition, highlighting the challenges she faced due to misconceptions. She recalls feeling particularly hurt by comments like 'Oh, but you don't look ill,' which left her feeling invalidated and dismissed...
Being Active with Crohn's or Colitis Video
Переглядів 2512 місяці тому
It can be difficult to be active with Crohn's or Colitis, but exercise is important for our physical and mental health. This video looks at the evidence behind exercising, as well as some top tips on how to increase physical activity. For more information visit ► crohnsandcolitis.org.uk/exercise
The symptoms of Crohn’s and Colitis
Переглядів 1,8 тис.4 місяці тому
This film outlines the different symptoms that some people may experience when living with Crohn’s or Colitis. Not everyone is affected in the same way. Many people with Crohn’s or Colitis experience symptoms that affect their tummy or how they poo. But these conditions may not just affect the gut, it can have an impact on other body parts too. In fact, nearly 1 in 2 people with Crohn’s or Coli...
Crohns and Colitis No More Excuses
Переглядів 187 тис.5 місяців тому
Without diagnosis, without the right treatment Crohn’s and Colitis can be life threatening. People who experience delays to diagnosis are twice as likely to need surgery. #CutTheCrap Don't ignore your symptoms, use our symptom checker today. ► crohnsandcolitis.org.uk/info-support/information-about-crohns-and-colitis/all-information-about-crohns-and-colitis/symptoms/symptom-checker
Find The Right Words With Our Talking Toolkit!
Переглядів 1807 місяців тому
Britain’s Coupon Kid, Jordon Cox tells us how helpful our free Talking Toolkit would have been for him when he was first diagnosed with Crohn’s Disease. To find out more visit ► crohnsandcolitis.org.uk/info-support/information-about-crohns-and-colitis/all-information-about-crohns-and-colitis/talking-toolkit
Finding the right words: Meet Femi, living with Crohn’s Disease
Переглядів 2007 місяців тому
We know finding the right words isn’t always easy, and sharing how you feel can be daunting. On the other hand, it could lead to the people around you being more aware of how they can support you best. Watch this video as we hear from Femi. Femi was diagnosed with Crohn’s Disease when he was a teenager. He discusses how he’s managed to be more open about living with the condition among his frie...
Crohn's & Colitis No More Excuses
Переглядів 167 тис.7 місяців тому
Watch our new Cut The Crap campaign ad that's launching in cinemas across the UK today. Let us know where you spot it! We say #CutTheCrap to all the excuses people make to delay checking their symptoms. Use our symptom checker to help you decide if you should seek further help. Instagram: crohnsandcolitisuk X: CrohnsColitisUK Tiktok: www.tiktok.com/@crohnscolitisuk Fa...
Coming to a cinema near you. Here's a sneak peak....
Переглядів 1508 місяців тому
Coming to a cinema near you. Here's a sneak peak....
Crohn's & Colitis UK AGM 2023 With Guest Speaker Professor Kevin Whelan
Переглядів 9658 місяців тому
Crohn's & Colitis UK AGM 2023 With Guest Speaker Professor Kevin Whelan
Cut The Crap: Check for Crohn's and Colitis
Переглядів 26 тис.9 місяців тому
Cut The Crap: Check for Crohn's and Colitis
Cut The Crap: Check for Crohn's and Colitis
Переглядів 63 тис.10 місяців тому
Cut The Crap: Check for Crohn's and Colitis
Types of surgery for Colitis
Переглядів 3,3 тис.Рік тому
Types of surgery for Colitis
Types of surgery for Crohn's
Переглядів 2,9 тис.Рік тому
Types of surgery for Crohn's
Natalie-Amber: Check for Crohn's and Colitis
Переглядів 2,2 тис.Рік тому
Natalie-Amber: Check for Crohn's and Colitis
We are Crohn's & Colitis UK
Переглядів 3,1 тис.2 роки тому
We are Crohn's & Colitis UK
Facebook Live - Diet (28/04/2022)
Переглядів 9312 роки тому
Facebook Live - Diet (28/04/2022)
Facebook Live - What's on the horizon for Crohn's and Colitis treatment? 16/03/2021
Переглядів 1,8 тис.2 роки тому
Facebook Live - What's on the horizon for Crohn's and Colitis treatment? 16/03/2021
Results from CLARITY IBD | Crohn's & Colitis UK
Переглядів 1,3 тис.2 роки тому
Results from CLARITY IBD | Crohn's & Colitis UK
Fertility, pregnancy, breastfeeding, women's health, and more - Facebook live event (03/02/2022).
Переглядів 4832 роки тому
Fertility, pregnancy, breastfeeding, women's health, and more - Facebook live event (03/02/2022).
Crohn's, Colitis and Coronavirus Update 20.12.21
Переглядів 1,9 тис.2 роки тому
Crohn's, Colitis and Coronavirus Update 20.12.21
#CrohnsAndColitisAwareness Week Mental Wellbeing Q+A
Переглядів 5692 роки тому
#CrohnsAndColitisAwareness Week Mental Wellbeing Q A
Craft it at Christmas!
Переглядів 822 роки тому
Craft it at Christmas!
AGM 2021 with guest speaker, Dr Tariq Ahmad
Переглядів 5342 роки тому
AGM 2021 with guest speaker, Dr Tariq Ahmad
John talks about In My Shoes
Переглядів 1,3 тис.2 роки тому
John talks about In My Shoes
Kevin talks about In My Shoes
Переглядів 1432 роки тому
Kevin talks about In My Shoes
Kevin talks about In My Shoes: 24 hours with Crohn's or Colitis
Переглядів 4392 роки тому
Kevin talks about In My Shoes: 24 hours with Crohn's or Colitis
How to make a keyring out of shoelaces
Переглядів 7333 роки тому
How to make a keyring out of shoelaces
How to make a tote bag - Upcycling Day 2021
Переглядів 3053 роки тому
How to make a tote bag - Upcycling Day 2021
In conversation with Andy from The Circle
Переглядів 3153 роки тому
In conversation with Andy from The Circle

КОМЕНТАРІ

  • @Robbiewa-bg4lu
    @Robbiewa-bg4lu 23 години тому

    Will there ever be a cure for this ?

  • @vishalchaudhary-nf6gr
    @vishalchaudhary-nf6gr День тому

    Planet Ayurveda has been a true blessing for my ulcerative colitis. Their natural products have helped reduce my symptoms and improved my daily life. Can't recommend them enough.

  • @bobhanson540
    @bobhanson540 2 дні тому

    Do they make you have a driver

  • @Michelle-qd9gm
    @Michelle-qd9gm 10 днів тому

    Thankyou for sharing with us 😊❤ you all did great I’ve got colitis

  • @StefTechSurfer
    @StefTechSurfer 12 днів тому

    How to handle travel?

  • @EyeOnAntisemitism
    @EyeOnAntisemitism 19 днів тому

    I’ve just been diagnosed

  • @ahb3251
    @ahb3251 Місяць тому

    "A sizeable chunk of the population" represented here by, what looks like, 18-25 year olds. Disappointing.

  • @dantaylor333
    @dantaylor333 2 місяці тому

    Colitis here, all the best everyone. I wish I had answers. All I can say is less stress seems to help

  • @sirrom1735
    @sirrom1735 2 місяці тому

    Exercising stresses the body. UC is a disease that is stress dependant, avoid exercise. Ever since I stopped exercising and sports altogether 7 years ago I've only had 1 flare up. Before I was costantly sick. Walking is all that's needed to stay mobile and be able to move properly.

  • @paramedicchrisbookseries
    @paramedicchrisbookseries 2 місяці тому

    Another really helpful video.

  • @paramedicchrisbookseries
    @paramedicchrisbookseries 2 місяці тому

    Being a chrohn's sufferer myself, I totally relate to this video. I will be sharing this with friends and family to help them.

  • @ItaThe3rd
    @ItaThe3rd 2 місяці тому

    I was in good shape for more than a year, but now I'm suffering from a flare-up again, and I feel so alone with the disease. Today I went below 60kg (I'm a 1.85m man)for the first time in 3 years and I'm sick for more than a decade, but now I'm in my 30s, and my parents are old and can't help me physically anymore, and my good childhood friends don't live near me anymore. My dog is suffering from this too because I can't take him on long walks or play with him. I just want health in my life. Everything else is a bonus.

  • @craigrandle2814
    @craigrandle2814 2 місяці тому

    Just in the process of diagnosis at the moment. This video has helped massively with the anxiety I've had the last couple of weeks. These symptoms are definitely everything I have. Going for my colonoscopy on Tuesday

  • @LyndonNelson-dg2no
    @LyndonNelson-dg2no 2 місяці тому

    Best thing ive ever done was become a member i suffer with depression and health anxiety its been a great help and eased my mind glad im a member thankyou

  • @jacobwyatt8738
    @jacobwyatt8738 4 місяці тому

    This helped me a lot, thank you 🙇‍♂️

  • @health_yogi7687
    @health_yogi7687 4 місяці тому

    <3

  • @karenhartshorn1017
    @karenhartshorn1017 4 місяці тому

    ❤ Well done to all of you and thank you for speaking out and telling your story’s. I can relate to such a lot of the content. Wishing you all well. Take care of yourselves 💜💜💜

  • @user-pi8et3km8p
    @user-pi8et3km8p 4 місяці тому

    That’s my bestie 🎉❤ fab video, well done to everyone involved

  • @kaizenrl
    @kaizenrl 4 місяці тому

    Great stuff and thank you to those who felt comfortable sharing their experiences. It means a lot to us all!

  • @optimusphill6377
    @optimusphill6377 4 місяці тому

    Powerful and Brilliant! as a sufferer this means worlds to see it on UA-cam, Thank you!

  • @sylvieashton5675
    @sylvieashton5675 4 місяці тому

    Thank you 🙂

  • @DerekGrubb
    @DerekGrubb 4 місяці тому

    Well done to the three of you for talking so well about your experiences. A fantastic video explainer.

  • @TheDollAbyss
    @TheDollAbyss 4 місяці тому

    Colitis 🤚🏻

  • @clanka5509
    @clanka5509 4 місяці тому

    And with the treatment well fuck me you can get cancer liver failure and many other shit things

  • @MamaMuses-vk6me
    @MamaMuses-vk6me 4 місяці тому

    It’s great you have this info but getting the system to investigate fast enough is too hard. And then once diagnosed it’s an absolute shambles! My daughter is completely traumatised and doesn’t have hope it’s devastating (got diagnosed with crohns after 2 years of pushing and testing and lots of waiting) as a mother it’s behond heart breaking 💔

  • @MamaMuses-vk6me
    @MamaMuses-vk6me 4 місяці тому

    My daughter finally got diagnosed after two years of tests and dismissals. Her third attempt at a colonoscopy finally happens and confirmed crohns. The whole process has been one trauma after another. She’s only 16 and being given his many meds with ridiculous side effects that the drs dismiss are not to do with the meds. They say they’re there but when you ring up in urgency it’s two days later and then dismissed. She’s in constant pain currently bed bound as her joints hurt so much. No support. I’m exhausted with it all and I’m not the one with crohns. She constantly tells me I can’t live like this! How am I supposed to give her hope in this situation??

  • @johnallen7367
    @johnallen7367 4 місяці тому

    Its not a disease if you can change your diet and it goes away.

  • @johnallen7367
    @johnallen7367 4 місяці тому

    People who eat carnivore diet cure their gut issues. All of them. Its what you eat.

  • @dantaylor333
    @dantaylor333 5 місяців тому

    colitis here. There needs to be more support and information about our condition. Thank you for this channel

    • @TheDollAbyss
      @TheDollAbyss 5 місяців тому

      🙌🏻 I second this comment. Colitis sufferer myself 😩

    • @Darcy_Waters
      @Darcy_Waters 2 місяці тому

      Me 3

  • @kaidyasikas2569
    @kaidyasikas2569 5 місяців тому

    Hey Louise. As a 30 year sufferer of Ulcerative Colitis I have been in remission for the last 10 years. I achieved this by strictly following a gluten free diet. 2 months ago I was given a wrong order at a cafe and within 2 days the symptoms returned. With the help of predsol enema I am just starting to get well now. Gf might not work for everyone but it’s certainly worth trying.

  • @kaycooke6466
    @kaycooke6466 5 місяців тому

    😊Thank you, very informative & as you say, each person is & can have very different symptoms. I needed to have extensive surgery, which I required a Stoma & has helped immensely. Good luck! Kay

  • @allisonsuzanneblue
    @allisonsuzanneblue 6 місяців тому

    Thank you for your honest and frank description of how we can still exercise and pull ourselves out of fatigue if we are able to. I will do the exercises starting today. 😀

  • @p-squared6766
    @p-squared6766 6 місяців тому

    Make sure you carry a mirror to look at your b-hole😂

  • @Skyehye3113
    @Skyehye3113 6 місяців тому

    Thank you Louise you are so stunning orange eyeshadow and blue dress ! Stun

  • @sandradepandra2
    @sandradepandra2 6 місяців тому

    My experience has been so accurately identical to yours

  • @eddkennedy6458
    @eddkennedy6458 6 місяців тому

    The carnivore diet put my ulcerative colitis into remission, I have had UC for 18 years.

  • @user-ok9ml7bi8t
    @user-ok9ml7bi8t 6 місяців тому

    know how you feel had uc since 06

  • @cheekyoziechick
    @cheekyoziechick 7 місяців тому

    Know your vitamin D levels. Do Drs want to know..not really.

  • @paulcahill125
    @paulcahill125 7 місяців тому

    Please help me I’ve got severe ulcerative colitis and been admitted to hospital After tests and small bowel MRI I have Crohn’s disease in my small bowel complete terminal ileum and right side colon.. I’m on so much medication 💊 and just starting 40mg prednisone again Also starting Infliximab infusions on Tuesday morning Any advice please from all you fellow people 👍🏻

  • @catzm.2522
    @catzm.2522 7 місяців тому

    Hello can Azathioprine and infliximab can be used safely together? Any thoughts?

    • @taaaktik3132
      @taaaktik3132 29 днів тому

      Azathioprine is worse for me not worked at all so i start the infection and now i am better!

  • @DamnDealDone
    @DamnDealDone 7 місяців тому

    Blackverts and blackvertising sucks.

  • @5CENT-STUDIOS
    @5CENT-STUDIOS 8 місяців тому

    He makes such a good point it’s not that I don’t like people, but the sensation makes it practically impossible to be around people let alone helping them

  • @christinemarieryan6010
    @christinemarieryan6010 8 місяців тому

    Hi thank you for sharing I just be told I have the condition so any advice I do appreciate .

  • @andrekloer
    @andrekloer 8 місяців тому

    It may be caused by embodied trauma as wel, im combination with other causes. There is an interesting book called Cured. What worked for me are (living) probiotics, I drink every day home brewed water kefir, and am symptom free and medicine free for about a year now

  • @xtusk
    @xtusk 8 місяців тому

    I have uc and This is probably the one thing i wish people understood the most about the disease. Currently im finding it hard to work full time coz the struggle of any task even if it's easy is difficult for me. Everyday it feels like ive been hit by a bus and people just think aw hes lazy but no its not my fault i feel like this. I love my job but its so hard when everyday u feel like ur doing less and less coz of the extreme fatigue. I hope this is just a phase of this illness coz i feel my true self slipping further and further away and leaving me an empty shell. Even my fav thing to do is gaming but cant do that coz im sleeping all the time trying to catch even the slightest bit of energy. Also anyone else constantly get tips from people who know nothing about the disease like....maybe change ur diet🤦‍♂️🤦‍♂️ anyone else experiencing this terrible extreme fatigue and got tips??

  • @drew1564
    @drew1564 8 місяців тому

    If only it was easier to get a diagnosis

  • @MrFreddyvizzle
    @MrFreddyvizzle 8 місяців тому

    So the end of this video " eat better and exercise, it'll help your fatigue" .... Ok thanks, great In theory

  • @yvonneho876
    @yvonneho876 8 місяців тому

    I didn't get diarrhea or bloody bowels But still diagnosed with UC I feel pain and bloated that's it